Friday, November 30, 2012

Scott's Obituary


Scott Douglas Newman

1971-2012


After a hard fought battle, Scott Douglas Newman died of Alpha 1 Antitrypsin Deficiency on 30 November 2012.  He was born in Logan, Utah, on 12 February 1971 to Douglas and Tamera Crozier Newman.

Scott married Janiece Coombs, daughter of Jim and Debra Christensen Coombs, on 14 June 1991 in the Logan LDS Temple. They made their home in Bothwell, Utah.  Scott was very proud of his children: Shaunie (Mark) Mackey, Shelby, Shaylie, and Mick. 

The birth of Shaunie and Mark’s baby daughter, McCall, brought Scott great joy the last three months of his life.  She was his little bed feller: McCall fascinated with the fan; Scott fascinated with his first grandchild.

All the things he didn’t get enough of in his youth, Scott encouraged his kids to do.  Mick showed his first show steer at such a young age, he had to peek under its belly to see the judge.  Last spring, Scott was bundled in a bus, so the whole family could ride together and cheer for Shelby and Bear River High School (his alma mater) at the state championship softball game.  This fall, he managed to watch Shaylie play volleyball at home games.

Scott started the Golden Elite Heifer Futurity Show in Box Elder County and served on county and state fair committees.

Scott reluctantly resigned his position as Customer Service Representative at Greenline Equipment, Tremonton, Utah, early this summer.  He was a big man who took great pleasure in big, green machines.   Thanks to Greenline and many friends who supported him and his family the past few years.

In addition to his immediate family, Scott is survived by three sisters: Carrie (Mike) Brown, Melissa (Eric) Hansen, and April (Cameron) Greener; in-laws: Jamie Hansen, Cody (Dawn) Coombs, and Chad (Wanda) Coombs; and a large, extended family that supported and loved him.  He was greeted on the other side by all his grandparents.

Viewings will be held at the Tremonton West Stake Center on Monday 3 December, from 6-8:00pm and Tuesday from 9:30-11:30am.  Funeral services 4 December, at 12:00pm at the Tremonton West Stake Center Chapel.  Burial at Valley View Cementery in Bothwell, Utah

Scott Newman

Scott RAN into the arms of a loving Heavenly Father and many family members who love him so, just now.

Scott--We are so happy you will not suffer anymore but heartbroken to have to live without you. We love you and will miss you everyday. Save us a spot and help us be happy until we can be with you again.

Thursday, November 29, 2012

Memories of Scott

When I started this blog, I truly thought it would be a documentation of Scott getting a liver transplant and a "happily, healthy ever after." As you know, that is not meant to be and the ending will be much different then I thought.  I knew there would be obstacles, bumps in the roads, struggles and that writing those would be difficult, but this, this is indescribable.

I'm not sure I'm cut out to write a grief blog, a my brother is dying blog.  The words I want to write are sad, depressing, and sometimes the things I think aren't very nice or spiritual.

Scott has life in him still.  But THIS IS NO LIFE.

He is essentially unconscious. He does not respond to us talking to him.  When we tried to re-position him last night, he did make some moaning noises that would literally BREAK YOUR HURT (and did ours).

He has not eaten or drank anything for over two days now.

He is so swollen.  His eyelids and lips are puffy.  

He is working very hard to breath now.  He is breathing noisily and those breaths appear labored and difficult.

I spent yesterday evening and last night at Scott's place.  It was so sad but also parts of it were "nice" We sat around Scott for most of the evening and told him we loved him.  We shared our favorite memories of Scott with one another and I'll share some with you.

From our Mom:
Scott got to play little league baseball before any other boys his age because his birthday falls early in the year.  Mom and Dad were so proud of their little athlete.  Most of the season...he sat on the bench.  One particular game, Scott got to play and was sent out to right field...you know the place where generally there isn't a whole lot of action.  Finally, a ball was hit straight to right field.  Everyone looked for Scott but could not see him anywhere on the field.  Mom finally spotted him at the swings, swinging away.

Scott went to his first day of school.  He didn't love it.  He came home and told Mom and Dad that "the farm needed him more" and he wouldn't be attending school anymore.

From Shaylie:
Scott and Shaylie were driving home from Logan.  Scott immediately turned the truck around and said he needed some radishes.  These radishes were growing in a field they just passed... He told Shaylie to get out and dig up some radishes for him.  The digging tool he gave her---some pliers! Shaylie said the radishes were about a foot under and there she sat digging up radishes, with pliers, while Scott smiled from the truck. Shaylie didn't know that Scott knew who's field it was and was getting a real kick out of this.  She extracted the radishes and brought it back to her Dad.  Scott took a big bite out of it and insisted Shaylie do the same.

From all the kids:
One year for Christmas, the kids had been arguing and fighting.  They were still quite young.  Scott decided that they would only be getting coal for Christmas.  Despite Janiece's protests on Christmas eve Scott didn't put out the kids toys and real presents.  Instead he had a large sac of coal that the kids woke up to Christmas morning.  After a few tears from the girls, with a huge smile, and big laugh Scott let the kids in on his little joke.

From Janiece: (and a few others)
Scott was terrible at keeping secrets!  He just was too excited to keep his surprise inside.  He couldn't wait to ask Janiece to marry him once he got that ring.

From Me:
When Shaunie was only a few years old, I was babysitting her at Scott and Janiece's house.  They had a little bum lamb outside. I looked out the window and saw that somehow that little lamb had gotten out of his pen. I opened up the door to try and catch the lamb and it ran right into the house! I finally got it out, but I did not want Scott (or anyone) to find out about this little escapade.  I triple checked that there were no signs of lamb entry and thought that I could keep my secret.  However, when Scott came home, I was just sure that somehow, sometime he was going to find out.  I had to tell him and I did.  He laughed and smiled and said "Hell April, I told you to tend Shaunie not the lamb!"

From Cody (Janiece's brother):
Cody told us a great story of Scott helping him train a colt.  I'm afraid I won't get the details correct, but I will try.  But if you see Cody, you need to hear his version.  Scott and Cody were training a colt named Misty.  Misty reared up and threw Scott off.  Cody was holding on for dear life to Misty's reigns and finally got her settled down.  Scott jumped up but said "he had had enough"  They got ready to leave when they saw a neighbors horse get out and run up the road.  Cody got on Misty and rode after the neighbors horse.  Unfortunately the neighbor's horse was hit by a truck.  Scott was close behind and of course even though he "had had enough" they got the trailer and stayed for a long time helping out the people involved in the accident.  That was Scott-always willing, always there to help.

From Deb (Janiece's Mom):
When Scott and Janiece were dating, the Coombs were having party up at Grandpa's Grove.  There was a large rope swing that overhung a lake.  You could swing out and drop into the lake.  Scott jumped on the swing...but he didn't let go.  He swung back and smacked right into the tree.  Deb, thought Scott had to be dead.  Scott couldn't stop laughing.

There were many moments of happy remembering last night.  But I also experienced one of the saddest moments of my life.  I know that whenever I think about it, I will cry.  A mother's love for her children is one of the strongest emotions on earth, I believe.

Scott stirred a little when my Mom, Dad, Melissa and I were huddled around him.  We started telling him how much we loved him.  My Mom, crying, bent down and kissed Scott and said "You've been a good son"

From one of my favorite Children's Book:

"I'll love you forever
I'll like you for always
As long as I'm living
My baby you'll be"


If any of you have memories of Scott you would be willing to share, we would love for you to write them here under the comments.  It brings some happiness into this dark world of sadness for all of us.

 

Tuesday, November 27, 2012

Feeling Sad

Scott gets a little worse everyday. 

He is not eating or drinking much any more. He has a very difficult time swallowing most of the time.  Hospice has asked us to not give him anything to eat or drink, due to his high risk of choking.  Of course, if he asks, we do our best to help him get it down. He is having a very difficult time swallowing the medications he is given to help him be comfortable.  The nurse commented yesterday that he is starting to show some signs of dehydration. 

He continues to be very swollen and is swelling more on whatever side he is turned to or leaning towards.

He ran a fever the other night and was drenched in sweat, but that seems to have resolved now.

He is very jaundiced.  The whites of his eyes are now completely yellow. 

He did get up out of bed yesterday and shower.  This completely exhausted him and he didn't get out of bed for the rest of the day. 

He sleeps most of the time and when he wakes most of the time he recognizes people.  However, for the first time ever, he did not recognize immediate family recently.  Our cousin Tommy came to visit and Scott recognized him and called him "Tommy Tinker" which was the nickname Scott has always called Tommy.  It made me smile when I heard that and feel sad at that same time. 

Part of me wants Scott to be completely unaware of what is happening to him. I've asked my Mom many times throughout this if she thinks that Scott realizes or understands that he is dying. (Maybe my real question is does he accept this???)  My Mom does not believe that Scott does really know that he is dying.  Mom has said a few times that Scott is young and that the human body just naturally wants to live--to survive. This thought is incredibly hard, something I have struggled to process. I think her statement is true. I just really pray that Scott is truly comfortable and feels peaceful and there is not some inner turmoil. It seems so cruel. I know we have a loving God, but man, I just don't get this. I have to tell myself and believe that somehow God is making this work out and be okay for Scott. 

I've had to go back to work, back home, back to "life", and it's been torture.  Now that I am away, my mind is constantly focused on when I can get back to Scott's. Every time my phone rings, my heart drops.  I feel obsessed to "see him one more time".  I feel like I need to tell him goodbye and that I love him again. I don't think I will ever be satisfied with my "last goodbye"  

When I was with Scott, it was okay to suddenly burst into tears--everyone there understood.  It was okay to be sad.  I didn't have to pretend to be any other emotion than what I was truly feeling at that moment.  I can't do that now and sometimes I feel like I'm breaking inside and smiling outside. I hate that.  I'm sad my brother is dying, I'm sad I can't be there with him every moment. I don't want to do anything else right now, or make plans for the weekend, let alone tomorrow night. Somehow, planning something "fun" makes me feel like I am taking something away from Scott. I can't explain it....I'm just........SAD.  I think we are all validated to feel this way and "deserve" too.  I don't feel one bit bad about it. 

Melissa and I attempted to go black Friday shopping.  We woke up early.  We drove to Ogden.  We went to the first store.  I didn't have really anything that I truly wanted to buy.  When it became a decent hour we called Mom for the report on Scott.  We didn't feel much like shopping after that.  Because we were asked to do so, we went to one other store to buy Scott a new white shirt.............
Even though I hated what this meant more than anything, in some small way it was nice to feel like I could "do something" for Scott.   

The other day my in-laws were talking about our upcoming Family Christmas Party.  For many years Scott  was part of our party serving  as Santa.  I was always very proud of him.  Last year at the family party we had a not so great "fill in".  This year Eric (Melissa's husband) is going to be Santa for our party.  As I was talking about this years party with my brother in law, I suddenly felt this grip around my chest and literally felt like I could not breathe. For the first time, I thought about the possibility of having a Christmas without Scott and that thought made me feel like I was drowning.  I  went home and looked at all the Santa (Scott) pictures from our past parties and sobbed and sobbed over our "used to be normal" life.

My Mom said the other day that "life is never going to be the same".  I've written all these words, but she couldn't have said it better.  



April




Sunday, November 25, 2012

Time

From what I am told, Scott is about the same today as yesterday. 

For those who see him often, they have said that he is more jaundiced today, then they have ever seen before. 

He is very weak and is essentially dependent on others to move him around.  With help, he was able to get out of bed one time today.  He expresses that he wants to get up, but then physically can not, and by the time the help is ready to assist him, he has fallen back asleep.

He sleeps most of the time, but when awake, he does recognize people and most of what he says is making sense today.  He sometimes says a few things that do not, but we are happy he still recognizes us. 

The Hospice nurse came by today and she was asked how much longer she felt Scott had left on earth. As we all know this is an impossible question to answer, as only He knows, but something we are all wondering. She replied that she "didn't think that he could live for more than two weeks" It doesn't change anything of course--we will continue to love Scott and keep him as comfortable as possible.

For many days he has been calling out names in his sleep.  He usually calls for Janiece or for our Mom.  Today, he called out the name "Joe" and also asked where "Grandma Great" was at.  Great Grandpa Joseph "Joe" Nelson and Great Grandma Fosse Nelson are in Heaven and we feel he is surrounded with love from more then we have the ability to see. 


From Russell M Nelson:
Death separates “the spirit and the body [which] are the soul of man.” (D&C 88:15.) That separation evokes pangs of sorrow and shock among those left behind. The hurt is real. Only its intensity varies. Some doors are heavier than others. The sense of tragedy may be related to age. Generally the younger the victim, the greater the grief. Yet even when the elderly or infirm have been afforded merciful relief, their loved ones are rarely ready to let go. The only length of life that seems to satisfy the longings of the human heart is life everlasting.

Saturday, November 24, 2012

A letter to my Brother

See Below Post for an update with  more information...but here a letter for my brother.



To my Dearest Brother,

I was only seven when you moved out and I have far too few memories growing up with you then I would like.  But I am told that even though, you wanted desperately for this last baby--me--to be a "brother" you were enamoured by me and loved me to pieces. 

I am told that I was a late walker and a late talker because you carried me everywhere.  I never had to speak to get something I wanted, it was given to me because you anticipated my needs and wants. 

I am told that you and I always shared a room and some of that I do remember. I am told that you would jump up to get me when I would fuss or cry, even during the night. 

I remember our awesome red, white, and blue patriotic themed room.  I can't imagine that as we both got older, that you very much enjoyed sharing a room with your baby sister, but I don't remember ever feeling that way. 

I remember your water bed and oh how I loved that thing.  I didn't know of a single other person in the whole wide world who had a water bed.  I had my own bed of course, but I loved sleeping in the water bed, and more times then not you had a bed mate whether you wanted or not. 

I remember being terribly afraid of the dark my entire childhood and even some older years (I'll admit it now :). I hated the nights when you stayed out late and I didn't hear you breathing across the room.  I felt safe when you were there and scared when you were not.  When you moved out, I had a room "to myself" but this privilege was truly wasted on me. I never stayed much in there after you left and started "inviting" myself to sleep in Carrie and Melissa's bedroom.

I remember your love of being on the farm and watching you ride off with Dad in the truck or tractor.  I was a tiny bit jealous--not because I couldn't go, because I could if I wanted, but mostly because I didn't share that same love with you and didn't have that time that you did with Dad. 

I remember going to our farm for a field trip in Kindergarten.  Mom and Dad always let you skip school that day to, so you could help out.  I remember feeling like my heart was going to burst with pride as we turned down the canal road to the farm and I could see you and Dad's shapes from the road.  I remember you taking extra time to make sure my friends and I got that extra special "touch" on the field trip. 

I remember singing "Goodness Gracious Great Balls of Fire" with you at the top of my lungs and making Mom crazy.  Mom didn't care too much for the lyrics and didn't think it was very age appropriate for me, but oh how I loved singing it. It was one of your favorite songs and one of the first ones that I knew every.single.word of. 

I remember when you were taking welding classes and made me my own set of monkey bars for my birthday present. I don't think I was old enough to appreciate the time and skill it took to do that then, but today I do and I'm sorry I don't think I thanked you enough. I can't believe you did that for me. They are in Mom's yard with a beautiful flowering vine now, and I'll always remember you every time I see them.

I remember when my goldfish died.  I have always been very sensitive to animals and couldn't bear to see them hurt or die.  I haven't eaten meat since age 8 because of this.  Even though you were a farmer through and through and didn't share my sentiment, you took compassion on me when I was heartbroken over my goldfish.  Your friend Darrin was at our house and even so, you took time to help me.  You scooped my goldfish out put him in an empty toothpaste box, dug a hole in the backyard, and buried him.  I asked your friend Darrin to say a prayer, which he did.  You would probably remember this as one of your most embarrassing memories, but it holds a special place in my heart. 

I remember hanging on your friends and girlfriend (I only remember Janiece!) wanting to be right in the middle of whatever you were doing.  I would want to sit on their laps, hold their hands, and fulfill my "annoying little sister" duties to the fullest, which I believe I was quite successful at.  I truly NEVER remember you scolding me or driving me away.

I remember your teasing fondly now--tickling me, chasing me, and yes, even tooting in my face. :)

I remember you always wore a pair of wranglers, some boots, a t-shirt, and a baseball cap. 

I remember the awesome mullet hairstyle you sported for years.  I can picture your black curls in the back perfectly in my mind right now and can't help but smile. 

I remember standing proudly in your wedding line--the only one I've ever had the privilege of being included in, and thinking "this was the best day ever." I felt like a princess. And even though I was young, I remember feeling so proud of you, so happy for you.

I remember you as a newlywed living across the street from you.  I was happy to still have you close by.  I remember your old car, that looked like the car from ghost busters, and riding in the back seat as you drove over "big bumps" 

I remember each of your children being born, and how amazing that was.  Not many other kids my age were aunties and it was a special thing for me. I wanted to mother them and always be with them.  I loved your babies and still do, like I love my own.

I have always loved you big brother and I always will. I think in many ways we are opposites. I know I haven't always done the things you wanted me to and the opposite of this is true. But what I know now, and wish I figured out earlier, was how much it DIDN'T and DOESN'T matter.

I wish I had more time with you and that I could write I remember you growing old. I wish that I would never have a family picture without you in it.  I wish I had spoken more kindly and loved you more deeply all the days of your life. Forty one years has not been long enough and I don't know why God thinks that it has.  I believe in God and His plan, but I think I will always wonder why it had to be this way.  I can't imagine Him needing you more then we do here.  I look forward to a sweet reunion with you dear Brother and wish the time for me could be as quick on earth as it will be for you. 

Earthly life will not be the same without you, but for as long as I am living I will remember you.  My children  and their children, will always remember.  There will always be a place in my heart full of you and death can not separate that. 

I remember.

Love your baby sister,

April

Life

I hate writing this.  I hate that this is happening. I hate that life isn't fair. I HATE THIS!

I've mulled these words over and over in my head for 24 hours.  Thinking about them seems less final then writing them.  I've been asked to write them and so I will, with a heavy heart, a lump in my throat, and tears down my cheeks.

Scott is dying. His time on earth is nearing the end.

Scott has been rapidly declining over the past month.  I would estimate that over the last few weeks he has spent as much time IN the hospital as he has out.  It's been frustrating and hard for all of us, because it seems like treatments weren't helpful and options were running out.  Now we know that they have.

Scott is not a candidate for a liver transplant and there is no other plan or treatment. 

At his last visit in the hospital, about one week ago, difficult, heart wrenching discussions happened.  The conclusion was to take Scott home and make him as comfortable as possible.  We all feel like this is the best, and are trying to do this. 

Hospice services were initiated last Sunday. I can't express our gratitude for the compassionate and above and beyond services they have given to Scott.  Janiece comented today that over the last few days Scott has been more comfortable then he has been in months.  I think this is true as well. Scott has suffered enough and we are grateful that we can lessen this suffering somewhat. 

I know you are all probably wondering why Scott can't get a liver? 

There are many reasons including his BMI is too high, he does not heal well, and he is very prone to infection.  These obviously make him a very high risk patient and surgery would be very difficult.  I personally don't think he would survive such an invasive and long surgery. 

Scott is full to the brim of fluids.  He has gained a lot of weight in the past few weeks--eating hardly anything, yet retaining fluids.  His "water pills" aren't working.  All day long he only urinates a few ounces despite the medications.  His body isn't functioning the way it should.  The fluids stay and the scale goes up. His skin is taut and hard.  His pores are weeping fluid.

Scott has had pain everyday recently.  Most of his pain is related to his amputed leg.  He has a lot of muscle spasms in this leg and nerve related pain.  This isn't going to get better with a liver transplant.  Quality versus quantity?

Scott is weak and confused.  He is in bed 22+ hours a day now.  When the liver fails, it can cause an increase in ammonia levels in the body.  Scott was taking a medication called lactulose that helped him rid his body of the excess ammonia by making him, basically have constant diarrhea.  This medication was stopped about three days ago and the signs of a high ammonia level are more and more apparent today.      

Our family has been gathered by Scott's bedside.  Having "family sleepovers", good talks, and grieving together.  Yesterday, we watched family videos and cried and laughed. 

Death is inevitable for all of us.  The only thing that is certain when we are born, is that eventually we will die.  I'm not afraid of dying mostly because I believe that life doesn't end when we die, just...changes.  However, I am afraid of being mortally seperated  from my children.  My heart aches for Scott because of this.  My heart aches for his children growing up without their Dad.  I think of all the things Scott will miss out on and I feel like I just can't bear that pain....and it's not even me. 

Our Mom is crushed.  It's not "natural" to outlive your children.  My Mom is going straight to the top of the top in Heaven, I believe.  I think I can say with confidence that this last year has been pretty terrible for her.  She went from caring for her mother and being with her when she died to now caring for her son and watching him die.  It's just not right.  Her pain is evident and the pain is both emotional and physical.  This literally hurts every fiber in your being.

Our Dad is dealing with this the way he always does--by serving others.  He is staying busy and doing projects around Scott and Janiece's house, never going more than a few feet away.  I know if he didn't keep his mind and hands busy that this would break him on the outside too instead of just the inside. I know it rips him apart to see his oldest son, only boy, dying. He slept on the floor last night just outside of Scott's room, not because there weren't any beds available but because he and all of us want to stay close.

Janiece, oh where do I start?  This life she was thrust into has not been easy. She has lost so much yet continues to give.  You don't ever imagine that this would happen to you, yet for her, it has.  She has moved forward with faith and courage and been the rock that her children desperately need and no one else could fulfill.  Being a caretaker is hard, and Scott has been hard to take care of.  We LOVE you Janiece and will always be here for you now and forever!

Shaunie, Shelby, Shaylie, and Mick. My sweet nieces and nephews.  How I grieve for your innocence and childhood that was taken to soon from you.  You have endured things most adults will never face with a maturity that I can only believe God prepared you with.  Your Dad will live on through all of you.  I imagine the future filled with your babies being told of Grandpa Scott with fondness and tears in your eyes.  I know if your Dad had a choice he would choose to stay on this earth to be with you.  I truly wish that he could. 

We can never take your Dad's place, but the Newman's will be here for you in thick and thin.  I hope when you see us at all of life's important events your Dad's love with eminate through us.  I pray for courage for you in the next few days.  Be strong, remember this isn't the end.  We will see Scott again and he will be whole--completely healed and happy. I believe he will always  watch over you and be cheering you on from the sidelines in Heaven.  He'll be there when you show your steers.  He'll be there to see you graduate.  He'll be there in a different way then we want, but I know he'll be there. 

It's hard to die sometimes.  We have no idea how many hours, days, or weeks Scott has left on Earth, but we are trying to make his last moments the best as possible. I truly pray that Scott's passing and therefore healing, can come swiftly and mercifully, I ask you dear loved ones to join me in this difficult prayer. He has suffered enough.  We have suffered watching him.  Pray for peace for him and for his family.  I can't imagine this going on for very long, but only God knows, and we are trying our best to trust in His perfect timing. 

1 John 5:13
"These things have I written unto you that believe on the name of the Son of God; that ye may KNOW that ye have ETERNAL LIFE and that ye may believe on the name of the Son of God.


 

Friday, November 23, 2012

Watching Scotty Grow

Watching Scotty Grow

There he sits with a pen and a yellow pad
What a handsome lad
That's my boy

BRLFQ spells mom and dad
But that ain't too bad
That's my boy

You can have your TV and you nightclubs
And you can have your drive in picture show
I'll stay here with my little man near
We'll listen to the radio
Biding my time and Watching Scotty grow

Making a castle out of building blocks
And a cardboard box
That's my boy

Mickey Mouse says it's thirteen o'clock
Well that's quite a shock!
That's my boy

In four short yearsI've gone from rags to riches
And what I did before that I don't know
So let it rain on my windowpane I got my own rainbow
And we're sitting here shiningWatching Scotty grow

Riding on daddy's shoulders off to bed
Old sleepy head
That's my boy

Got to have a drink of water and a story read
A teddy bear named Fred
That's my boy

What's that you say momma
Come on and keep you feet warm
Well save me a place
I'll be there in a minute or so I'll think I'll stay right here and
Say a little prayer before I go

Me and God Watching Scotty grow
Me and GodWatching Scotty grow...

Our hearts are breaking.  The plan is keeping Scott as comfortable as possible.  Only God knows the next chapter in Scott's story or the hows or when's.  We are trusting Him and His perfect timing.