Scott has been having a little trouble the last few days.
A culture (test to see if infection is present) was taken of Scott's amputated leg a few days ago and unfortunately it came back positive with two types of bacteria (E.Coli and a second bacteria....that my Mom and Janiece couldn't the name of :) Scott has been started on two antibiotics. We are all hoping and praying that these antibiotics will take care of the infection in Scott's (amputated) leg.
Scott also developed a large blister on his amputated leg at his incision. This has caused quite a bit of discomfort for Scott. At one point, Scott's medical team thought that it may have to be lanced (drained) but that would create another "wound on top of his current wound" which could lead to more problems. So far, they are just waiting and seeing what happens and so far, the blister remains.
Scott went to McKay Dee hospital today to have his wound looked at. He is carrying a lot of extra fluid, despite being on a diuretic (medication to rid his body of the extra fluid). They wound team were quite concerned about the fluid and are watching it closely. Scott needs to keep his amputated leg elevated.
Having Scott home has been wonderful and he is so much happier at home. However, it is easy to feel like he is "well and fine" now, when I see him dressed at home in his recliner. While, he is SO much better, he still has a long way to go.
In other news, Scott and his family continue to feel the amazing love and support that pours over them daily. Thank you. We can never thank each of you enough, or express how much it really means to our family.
Wednesday, June 29, 2011
Tuesday, June 21, 2011
Life at home
I spoke with Scott a few hours ago to see how he was doing. Life at home is good and he is happy to be back at home. He told me he has been transfering himself to the bathroom, to bed etc fairly well. His drains have not been working properly and despite the home care nurses efforts, they still aren't draining well. Scott has an appointment tomorrow at McKay Dee to see what can be done about his drains.
I hate to say it, but I really miss having Scott so close. I'm glad he's home but I miss being able to look at his leg myself, talk to the doctor myself, and on and on. Basically, it was easier for me to check in on him!
Scott is loving his visitors and we are once again overwhelmed with the kindness and love from his community. Thank you so very much.
I hate to say it, but I really miss having Scott so close. I'm glad he's home but I miss being able to look at his leg myself, talk to the doctor myself, and on and on. Basically, it was easier for me to check in on him!
Scott is loving his visitors and we are once again overwhelmed with the kindness and love from his community. Thank you so very much.
Wednesday, June 15, 2011
Monday, June 13, 2011
Newsworthy :)
There hasn't been much new information to post the last two days...hence why I haven't posted!
If I had posted the last two days this is what they would have looked like:
"Scott wants to go home. The doctors tell him he can't go home yet. Scott is not happy about this. Scott thinks the food at the hospital is terrible. The end."
But today, I have some good news to report...if everything goes as planned, Scott will be going HOME this Wednesday! He was told this morning, that he might be able to go home tomorrow, but the doc decided that Wednesday would be best, to ensure all was in order before the big day. Scott was pretty disappointed that tomorrow was out, but hey, what's 24 more hours when you have already been in the hospital for 624 (aka 26 days)? :)
Scott still has his PICC line (the long term IV). Today he had to receive Albumin in it, because his level was too low. Again, this can be caused by his liver impairment. There is no plan for Scott, to go home with his PICC line though, and it should come out before he is discharged. I know Scott will be glad to be rid of it.
They did change Scott's dressings and vacuums on his amputated leg yesterday, and that is still quite painful for him. I don't know how often he will have to have this done when he comes home.
Scott is progressing well in Physical Therapy. He has not had any more falls! The other day they took him out to the parking lot and he practiced getting in and out of his own truck. I was seriously afraid he was going to take off in the thing and not look back...luckily he behaved.
Since I put out the request for people to send cards for Scott, not a single day (that we receive mail anyway!) has gone by that I have not received a card (or more likely many cards!) for Scott. I assure you, that each one has made it to Scott. Each one has been loved and a source of encouragement for ALL of us. I can't thank you enough. It has been so fun to see the support "mailed" in for Scott. I have loved it just as much. Again, thank you.
I have to tell Janiece how much I love and appreciate her too. Because Scott was the oldest and I will forever be "the baby" :) Janiece was my idol growing up. You know the annoying sister that hangs all over your crush? Well, that was me. I always thought that Janiece was coming to visit me, not Scott. I wanted to scream with excitement when I got to stand in their wedding line. I loved every moment of shaking hands with all the people who came to wish Scott and Janiece well on their wedding. You would have thought the celebration was for me, because of how excited I was. When my nieces came into the world (and later my nephew), I loved them fiercely and was their number one aunt (at least in my eyes :) I took them to show and tell, and told everyone who would listen, that I had a sister in law and later that I was an aunt. I remember it like it was yesterday.
I've always loved Janiece, but even more deeply now. I have seen her stand with courage and face these challenges head on, never wavering in her faith or love for my brother. I am so happy he has someone who loves him so much. I know he will be fine, because he has Janiece by his side. She has shown compassion, when it was difficult! She has learned and done things that I am sure were never things she wanted to do. She has stayed by Scott's side, away from home and all of those comforts, because Scott wanted her there. Tomorrow is their 20th wedding anniversary and instead of spending it on a night out, she and Scott will be spending it at the hospital. When I expressed my sorrow in that, when talking to Janiece, she said "it's okay." And she's right, it doesn't matter...love is so much more than that. Thank you for teaching me that, Janiece. I love you to the moon and back.
I am proud of Scott and so relieved he is at the point he is right now. He still has a long road of recovery ahead of him and I pray daily that things will go as smoothly as possible. I pray that I see Scott smiling, happy, and healthy at the Box Elder County Fair in just a few short weeks-doing the things he loves and delighting in the sight of his children doing what they love. I know it will happen.
Thanks for following Scott's blog and continuing to check in. It has been an absolute joy and wonderful therapy for me to write it. I have so enjoyed doing it...even the times when I couldn't see the screen through my tears.
I still plan on writing updates and putting out information for the blood drive when the finishing touches are complete. I hope you will still continue to read.
I love to write, yet I can't find the words now to express my gratitude. Thank you, does not seem like enough. I kind of wish I could move back "home" for awhile to meet those of you I don't know and tell all of you personally how much your support has meant.
"Feeling gratitude and not expressing it is like wrapping a present and not giving it" William Arthur Ward
"Cease not to give thanks...." Ephesians 1:16
With so much gratitude,
April
Friday, June 10, 2011
We LOVE Rehab! ;)
I just left the hospital from seeing Scott.
He is doing well, but still begging and pleading to go home. The doctor had a heart to heart with Scott and said medically he was not ready to go home. The doctor said that generally patients with similar situations, stay in rehab anywhere from 2-8 weeks (Scott has been there 2 1/2 days now). He said Scott needed to stay at least one week and then they would take it day by day.
Last night the wound care nurse came into see Scott. She "milked" a lot of fluid from Scott's leg which then caused severe pain for Scott. It was a rough night. Luckily today he is much better and told me he did not have any pain.
His potassium is still low, which may just be a "normal" for him. He is also still taking the diuretic (to get the extra fluid off his body) and this could also cause his potassium to be low. Either way he is taking potassium replacements to try and replace what he is lost/losing.
Since Scott came to rehab he has been getting dressed everyday-he has less tubes now and getting dressed is even possible. It is great to see him dressed and not in a hospital gown anymore!
I think this may be the hardest part for Scott. I told him today that he just needed to be patient (I know easy for me to say)...he's going to go home soon and what a great day that will be.
He is doing well, but still begging and pleading to go home. The doctor had a heart to heart with Scott and said medically he was not ready to go home. The doctor said that generally patients with similar situations, stay in rehab anywhere from 2-8 weeks (Scott has been there 2 1/2 days now). He said Scott needed to stay at least one week and then they would take it day by day.
Last night the wound care nurse came into see Scott. She "milked" a lot of fluid from Scott's leg which then caused severe pain for Scott. It was a rough night. Luckily today he is much better and told me he did not have any pain.
His potassium is still low, which may just be a "normal" for him. He is also still taking the diuretic (to get the extra fluid off his body) and this could also cause his potassium to be low. Either way he is taking potassium replacements to try and replace what he is lost/losing.
Since Scott came to rehab he has been getting dressed everyday-he has less tubes now and getting dressed is even possible. It is great to see him dressed and not in a hospital gown anymore!
I think this may be the hardest part for Scott. I told him today that he just needed to be patient (I know easy for me to say)...he's going to go home soon and what a great day that will be.
Thursday, June 9, 2011
Two Days, Two Falls
Sorry for not posting yesterday. I was attending a beautiful funeral for my Grandpa-in Law in Oakley, Idaho. It was a perfect tribute to a great man. We love and miss you Grandpa!
Scott is working hard in rehab. Yesterday, when Janiece left for a moment to shower, Scott tried to get up by himself to use the restroom. He fell and sweet Mick was the person there who had to go get help. It scared him. With a lot of help Scott was able to get back into bed. He was stiff and sore but the Physical Therapy continued.
The fall also caused Scott to have more drainage from his amputated leg. The drainage also changed into a "new blood" color. It is worrisome.
This morning I got the bad news that Scott had fallen once again. This time they had to get the lift to get Scott off the floor. So, for today, he isn't allowed to use the walker and is only able to transfer to and from the wheelchair.
We are disappointed and worried about Scott falling so much. It is an eye opener to say the least. We're grateful that this has happened at the hospital though, where there are a lot of people and the right equipment to get Scott back up. What would happen at home? I really hope Scott can realize this as well, and will give rehab (a lot) more days to help him.
Scott is working hard in rehab. Yesterday, when Janiece left for a moment to shower, Scott tried to get up by himself to use the restroom. He fell and sweet Mick was the person there who had to go get help. It scared him. With a lot of help Scott was able to get back into bed. He was stiff and sore but the Physical Therapy continued.
The fall also caused Scott to have more drainage from his amputated leg. The drainage also changed into a "new blood" color. It is worrisome.
This morning I got the bad news that Scott had fallen once again. This time they had to get the lift to get Scott off the floor. So, for today, he isn't allowed to use the walker and is only able to transfer to and from the wheelchair.
We are disappointed and worried about Scott falling so much. It is an eye opener to say the least. We're grateful that this has happened at the hospital though, where there are a lot of people and the right equipment to get Scott back up. What would happen at home? I really hope Scott can realize this as well, and will give rehab (a lot) more days to help him.
Tuesday, June 7, 2011
Day of Frustrations
Today has been a frustrating day for Scott...and for his family!
As you know Scott wants to go home and was bound and determined that tomorrow would be the day that he went home...regardless of what the doctors recommended. When his family said that would not be taking him home, in desperation Scott began making phone calls to his friends to see if they would take him home. Sorry, if you received one of these phone calls.
My heart is once again breaking for my brother. There is no place like home and no one wants him home more than Janiece, his kids, and the rest of us. I think we can all see a little more clearly then Scott, the obstacles he (and his caretakers!) will face and we want to be as prepared as possible.
Scott is a social guy. He would be on his phone chatting with everyone non stop if he could. This is a challenge for him to be a "prisoner" (his words, not mine) in the hospital when all he wants is to be back home, doing the things he loves to do, talking with the people he loves, and living life again. I think he feels like we are trying to punish him by encouraging him to go to rehab but we all truly want what is best for Scott. It's very sad.
Besides the emotional roller coaster we have had a few other little setbacks.
Scott had one of his drains taken out of his amputated leg today...for a few hours anyway. Unfortunately, when he stood up, the place where the drain once was, leaked like a running faucet and the drain had to be replaced. He can go home with this drain, it just would have been nice to have one less "cord" to deal with.
Scott also attempted to use crutches today and it did not go as easily as we had all hoped. He is still very weak. Scott was really disappointed and this was also a sad moment and a mean reminder of just how much life has changed.
For now, Scott has agreed to go to rehab until this Friday. This is a good start. I pray that Scott can do well in rehab and learn (and be able to physically do it) all he needs to know for him to be mobile and have some independence when he goes home. I think this will make him so much happier.
Continue to pray for Scott, he still has healing to do.
As you know Scott wants to go home and was bound and determined that tomorrow would be the day that he went home...regardless of what the doctors recommended. When his family said that would not be taking him home, in desperation Scott began making phone calls to his friends to see if they would take him home. Sorry, if you received one of these phone calls.
My heart is once again breaking for my brother. There is no place like home and no one wants him home more than Janiece, his kids, and the rest of us. I think we can all see a little more clearly then Scott, the obstacles he (and his caretakers!) will face and we want to be as prepared as possible.
Scott is a social guy. He would be on his phone chatting with everyone non stop if he could. This is a challenge for him to be a "prisoner" (his words, not mine) in the hospital when all he wants is to be back home, doing the things he loves to do, talking with the people he loves, and living life again. I think he feels like we are trying to punish him by encouraging him to go to rehab but we all truly want what is best for Scott. It's very sad.
Besides the emotional roller coaster we have had a few other little setbacks.
Scott had one of his drains taken out of his amputated leg today...for a few hours anyway. Unfortunately, when he stood up, the place where the drain once was, leaked like a running faucet and the drain had to be replaced. He can go home with this drain, it just would have been nice to have one less "cord" to deal with.
Scott also attempted to use crutches today and it did not go as easily as we had all hoped. He is still very weak. Scott was really disappointed and this was also a sad moment and a mean reminder of just how much life has changed.
For now, Scott has agreed to go to rehab until this Friday. This is a good start. I pray that Scott can do well in rehab and learn (and be able to physically do it) all he needs to know for him to be mobile and have some independence when he goes home. I think this will make him so much happier.
Continue to pray for Scott, he still has healing to do.
Monday, June 6, 2011
Battle of the Wills
Scott's magnesium is still low so he continues to receive IV replacement of this. His blood pressure has also been a little high today (Scott generally runs on the lower end of normal). He did have one day of high blood pressure the first time he was in the ICU but overall they have been concerned about how low his blood pressure is. Not quite sure why all the fluctuation or what is causing this.
Scott has been up in the chair today and went for a wheelchair ride.
Like I have written before Scott desperately wants to go home. He is insisting that he can go home this Wednesday. He wants to do his therapy in Tremonton. He just really wants to go home. I understand this, I really do, but I just don't think this is the best plan for Scott.
The doctors want Scott to stay and do rehab at IMC. I also think this is the best idea for Scott. Scott is expected to be using crutches and he has never even tried them, yet. Right now, it is exhausting for Scott to get from the bed (which is a hospital bed that raises up to the easiest position for him to get out of bed from) and get in a wheelchair. The doctors want him to have at least three hours of physical therapy a day. I just don't see how he will be able to get in the vehicle, drive to town, and then do physical therapy for three hours. I think getting in the vehicle will be exhausting enough for him. There are so many other issues....I really want Scott to have a few days to learn how to manuever himself and the best way for Janiece and everyone to be able to help him....without anyone getting injured!
It worries me so much. I have seen patients that have not done (or have not given it 100%) physical therapy (with other issues like a knee replacement etc) and they suffer for it. They don't heal as quickly, they have an increased chance of having complications, and their mobility is forever diminished because of it. I don't want this for Scott.
I know how important the rehab part of Scott's illness/amputation is. I know how beneficial it can be for Scott to attend physical therapy and I honestly believe he will do better (at least for a few days) as an in-patient rather than at home.
Have I convinced you all yet? Because I couldn't convince Scott. :)
Whatever happens, it has to come from Scott. It has to be his choice and he has to be motivated to follow up with whatever choice he makes. As always, all of us will be behind him 110%, no matter what. We want to Scott well, we want Scott home, we want and will help him however we can. I want to see him at Shelby and Mick's baseball games, at Shaylie's dance recital, and cheering Shaunie on at the fair. There are so many things to look forward to and be happy about.
P.S. Scott don't kill me for writing this post. ;) Love you big brother!
Scott has been up in the chair today and went for a wheelchair ride.
Like I have written before Scott desperately wants to go home. He is insisting that he can go home this Wednesday. He wants to do his therapy in Tremonton. He just really wants to go home. I understand this, I really do, but I just don't think this is the best plan for Scott.
The doctors want Scott to stay and do rehab at IMC. I also think this is the best idea for Scott. Scott is expected to be using crutches and he has never even tried them, yet. Right now, it is exhausting for Scott to get from the bed (which is a hospital bed that raises up to the easiest position for him to get out of bed from) and get in a wheelchair. The doctors want him to have at least three hours of physical therapy a day. I just don't see how he will be able to get in the vehicle, drive to town, and then do physical therapy for three hours. I think getting in the vehicle will be exhausting enough for him. There are so many other issues....I really want Scott to have a few days to learn how to manuever himself and the best way for Janiece and everyone to be able to help him....without anyone getting injured!
It worries me so much. I have seen patients that have not done (or have not given it 100%) physical therapy (with other issues like a knee replacement etc) and they suffer for it. They don't heal as quickly, they have an increased chance of having complications, and their mobility is forever diminished because of it. I don't want this for Scott.
I know how important the rehab part of Scott's illness/amputation is. I know how beneficial it can be for Scott to attend physical therapy and I honestly believe he will do better (at least for a few days) as an in-patient rather than at home.
Have I convinced you all yet? Because I couldn't convince Scott. :)
Whatever happens, it has to come from Scott. It has to be his choice and he has to be motivated to follow up with whatever choice he makes. As always, all of us will be behind him 110%, no matter what. We want to Scott well, we want Scott home, we want and will help him however we can. I want to see him at Shelby and Mick's baseball games, at Shaylie's dance recital, and cheering Shaunie on at the fair. There are so many things to look forward to and be happy about.
P.S. Scott don't kill me for writing this post. ;) Love you big brother!
Looking up!
Scott is doing better everyday. He looks so different to me. He looks a little paler and like he has lost a lot of weight.
Before he left the ICU they did a Cortisol Test. Cortisol is a hormone produced by the adrenal glands. It breaks down protein, lipids (fat), glucose, and also maintain blood pressure (which Scott was not doing well). It also helps with the functions of the immune system (which again, Scott's was not doing too well). Lack of cortisol can also cause someone to have fatigue, which Scott has been experiencing long before he was admitted. The test showed that Scott was not producing enough (if any) cortisone. We don't know if this has been a chronic problem or is something that just started happening. Regardless, Scott was started on a steroid and it has made him feel so much better. Unfortunately, you can't stay on a steroid forever and they are already tapering him off of his. Hopefully, it gave him the boost he needs though to continue to get well.
Yesterday, Scott was able to get in a wheelchair and go for a ride in the halls. He did great, but by the end was absolutely exhausted. They are wanting Scott to stay awake more during the day and sleep during the night (you know, a regular schedule! :)
Scott is so anxious to get home. He keeps telling everyone that Wednesday he is leaving....we'll see. He hasn't attended any rehab (although he has had short visits from the physical therapist each day) and I think it very important that he does. I know how badly he wants to go home and I want him to be able to go home too. I just think it is going to be more difficult than he anticipates. He is still so weak. The goal is for Scott to be up and about using crutches, and I don't think he is ready for that, yet. I worry that if he doesn't get in a few good days of intense rehab he is going to be "behind" in his healing and moving.
I can't believe we have been "living" this for almost three weeks now. Slowly, I have been getting back to "real life" and it's hard to do. I miss not spending all day/most days at the hospital. When I leave, all I can think about is when I will be able to get back. When I'm there I feel like I am "doing something." My Mom and I were talking last night and we both agree that we are changed now. We want to be better and do better.
"What do we live for; if it is not to make life less difficult for each other?" Mary Ann Evans
Saturday, June 4, 2011
A Good Day
Scott has had a good day today. He was transferred from the ICU to a "regular" room on the 7th floor this time. (It is the Orthopaedic Surgical floor).
He is still quite sleepy, but we're glad he is getting the rest.
We are so happy and relieved. This is a baby step in the right direction and we couldn't be more grateful.
He is still quite sleepy, but we're glad he is getting the rest.
We are so happy and relieved. This is a baby step in the right direction and we couldn't be more grateful.
Friday, June 3, 2011
Low Blood Pressure
Unfortunately without the Norepinephrine on board, Scott's blood pressure is too low. They had to restart the medication a few hours ago.
Again, he can not be transfered from the ICU until he has been off this medication for 24hours. Pray that Scott's blood pressure can return to normal.
Otherwise, he is having a pretty good day. He has slept most of the day.
The few times he has been awake he has been anxious to see his children tonight. He has also been thinking about the days ahead and the days far ahead, and is quite teary about them. Scott remains positive, but I think the reality of his situation is weighing on him today.
When he woke up yesterday he remembered he had had his leg amputated but he initially believed that he had been taken home and brought back to the ICU. He essentially "lost" a week of his life in confusion and then induced sleep. I think he is grieving this time and again he just desperately wants to go home.
When we have talked about Scott being transferred to the floor with the case worker and other medical staff, they all agree on one thing--We have to do things differently this time. Scott has to rest. He has to do physical therapy at least twice a day (I'm pushing for three times!). He needs to be on some sort of schedule. And again, he needs to rest. Lack of rest contributed to his problem last time-he was so terribly sleep deprived that his body could not and did not fight off the infection and contributed to his confused mind. This was very scary for us and we do not want this to happen again. I'll admit I am completely TERRIFIED of this happening again...if Scott, jerks in his sleep or murmurs somthing, I am filled with fear that his mind is not yet clear. I never want to see Scott like that again--to look at him and wonder what deep dark hole the real Scott was buried in. Scary stuff.
We are requesting approval to take him outside to see the light of day and breathe fresh air. As soon as he is out of the ICU, we should be able to do this. We are doing everything the medical staff asks of us and for now, that includes limiting Scott's visitors. We hope you will understand. This breaks Scott's heart because he loves you all and he wants to see you and talk with you (For example, about 15minutes after he woke up yesterday he asked me to call Greenline and speak with Jeri Ann or Lori-to tell them he was back, doing okay, and to pass the word along). He wants to socialize and talk on the phone like he used to, but the docs think he needs to focus on healing and getting well. We want Scott to get well too.
As most of you know, Scott has had MULTIPLE blood transfusions. We are organizing a blood drive to "pay it forward" and would love, love, love for all of you to be involved (and by involved I mean give up some blood! :). It will be held in Tremonton and the blood will go to IMC but unfortunately, it can't be arranged to go directly to Scott (we're praying he doesn't need anymore, anyways!) Scott has O+ blood type, so if you have that type, we would especially LOVE to replace the stock Scott has used and desperately needed. But ANY and EVERY blood type is welcome and will be used for another family just like ours! (How's that for a sales pitch?) So please, if you can, donate blood. I'll post details on the blog when we have the specifics.
Thanks again, for your continued support.
"A friend is someone who understands your past, believes in your future, and accepts you just the way you are" (Couldn't find the author...?)
Again, he can not be transfered from the ICU until he has been off this medication for 24hours. Pray that Scott's blood pressure can return to normal.
Otherwise, he is having a pretty good day. He has slept most of the day.
The few times he has been awake he has been anxious to see his children tonight. He has also been thinking about the days ahead and the days far ahead, and is quite teary about them. Scott remains positive, but I think the reality of his situation is weighing on him today.
When he woke up yesterday he remembered he had had his leg amputated but he initially believed that he had been taken home and brought back to the ICU. He essentially "lost" a week of his life in confusion and then induced sleep. I think he is grieving this time and again he just desperately wants to go home.
When we have talked about Scott being transferred to the floor with the case worker and other medical staff, they all agree on one thing--We have to do things differently this time. Scott has to rest. He has to do physical therapy at least twice a day (I'm pushing for three times!). He needs to be on some sort of schedule. And again, he needs to rest. Lack of rest contributed to his problem last time-he was so terribly sleep deprived that his body could not and did not fight off the infection and contributed to his confused mind. This was very scary for us and we do not want this to happen again. I'll admit I am completely TERRIFIED of this happening again...if Scott, jerks in his sleep or murmurs somthing, I am filled with fear that his mind is not yet clear. I never want to see Scott like that again--to look at him and wonder what deep dark hole the real Scott was buried in. Scary stuff.
We are requesting approval to take him outside to see the light of day and breathe fresh air. As soon as he is out of the ICU, we should be able to do this. We are doing everything the medical staff asks of us and for now, that includes limiting Scott's visitors. We hope you will understand. This breaks Scott's heart because he loves you all and he wants to see you and talk with you (For example, about 15minutes after he woke up yesterday he asked me to call Greenline and speak with Jeri Ann or Lori-to tell them he was back, doing okay, and to pass the word along). He wants to socialize and talk on the phone like he used to, but the docs think he needs to focus on healing and getting well. We want Scott to get well too.
As most of you know, Scott has had MULTIPLE blood transfusions. We are organizing a blood drive to "pay it forward" and would love, love, love for all of you to be involved (and by involved I mean give up some blood! :). It will be held in Tremonton and the blood will go to IMC but unfortunately, it can't be arranged to go directly to Scott (we're praying he doesn't need anymore, anyways!) Scott has O+ blood type, so if you have that type, we would especially LOVE to replace the stock Scott has used and desperately needed. But ANY and EVERY blood type is welcome and will be used for another family just like ours! (How's that for a sales pitch?) So please, if you can, donate blood. I'll post details on the blog when we have the specifics.
Thanks again, for your continued support.
"A friend is someone who understands your past, believes in your future, and accepts you just the way you are" (Couldn't find the author...?)
June 3, 2011
Scott is having a good morning, so far. Janiece and I (plus the nurse and the physical therapist) just finished getting Scott up (to the side of the bed). He had a quick "bath" and then laid back down again. He did great! He is now tuckered out and tucked back in bed.
He will probably be in the ICU for at least 24 more hours. His blood pressure was very low last night so he was placed on Norepinephrine to stabilize it. He now runs about 120-130/30-40. They turned the Norepinephrine off a few minutes ago to see how his blood pressure would react with out it. So far it is staying above what they want it to. He has to be off this medication for 24 hours before he can be transfered out of the ICU.
A few other issues we are working on today:
His albumin level is low again (this could be related to malnutrition or his liver impairment). They are replacing this through his IV.
His Potassium is also low today (so of course, his sodium is normal-remember their inverse relationship? ;) They are also replacing his Potassium through his IV.
He is resting peacefully now and we hope this continues.
I'll update more later tonight.
Thank you for continuing to check the blog and praying for Scott. We appreciate it so much.
He will probably be in the ICU for at least 24 more hours. His blood pressure was very low last night so he was placed on Norepinephrine to stabilize it. He now runs about 120-130/30-40. They turned the Norepinephrine off a few minutes ago to see how his blood pressure would react with out it. So far it is staying above what they want it to. He has to be off this medication for 24 hours before he can be transfered out of the ICU.
A few other issues we are working on today:
His albumin level is low again (this could be related to malnutrition or his liver impairment). They are replacing this through his IV.
His Potassium is also low today (so of course, his sodium is normal-remember their inverse relationship? ;) They are also replacing his Potassium through his IV.
He is resting peacefully now and we hope this continues.
I'll update more later tonight.
Thank you for continuing to check the blog and praying for Scott. We appreciate it so much.
Thursday, June 2, 2011
God is Love
I have to start this post by expressing my love for my husband's (but really ours) Grandpa Manning. I briefly wrote about him a few posts ago. He was bucked off a horse and lifeflighted to IMC a few days ago. He was in the ICU just a few doors down from Scott. He had a C6-C7 neck injury that left him paralyzed. He passed away earlier today. We are so sad but we know we will see him again. We are eternally grateful for the wonderful Plan of Salvation that a loving Heavenly Father laid out for each of us. We love you Grandpa Manning!
Words can not express what I want to share with each of you tonight. I hope my attempt will show you some glimpse of an amazing moment.
They had stopped Scott's sedation medication mid morning to help him wake up before they took the breathing tube out. Scott had not even budged hours after the medication was turned off. The nurse thought it would still be a long time before he was ready to be extubated.
Our parents slipped down to the cafeteria to eat and I joined them a few minutes after. We ate and made our way back up to the ICU. Mom and I went in first to check on Scott's progress. When we made it to the door, I saw that the Respiratory Therapist was packing up the ventilator. We quickly saw that Scott had been extubated. Mom and I went on the side of his bed and touched him and told him how much we loved him. Scott started to cry and we all shed many happy and thankful tears. Scott was back.
I called Janiece and told her with so much happiness in my heart that Scott was awake and he was himself. I put the phone next to Scott's ear and heard his dear wife tell him how much she loved him in between sobs. There was not a dry eye in the room. Thank you Janiece for loving Scott so much! I can't explain the magnitude and emotion that was in these moments. I can only say that I am blessed to have been there.
I asked the nurse how Scott how the extubation had went and this is what she told me:
Scott had been so very sedated she did not expect him to wake before she left at 7:00 tonight. She went in to check on him around 2:00 and he had his eyes open. The nurse asked Scott if he was ready to have the breathing tube taken out and he calmly shook his head yes.
They took the breathing tube out minutes later. After Scott had a minute to recover, in his raspy voice he asked where Janiece and his children were. The nurse explained that Janiece had gone home to attend Shaunie's graduation ceremony. Scott started to cry and said "I really wanted to go to that."
Shaunie, I know your Dad is so proud of you and it broke his heart to not be there for you tonight. The nurse commented on how she could feel his love for you and his great sadness that he had missed this important milestone in your life. He would have given anything to have been able to go.
Mom and I saw Scott moments after this and only moments after I had found out that Grandpa Manning passed away. Both moments were peaceful, calm, filled with love, happiness, and comfort.
Scott did not remember much initially, but as the night has progressed he is remembering more and more. I think he senses how ill he was. He desperately wants to go home, and we desperately want to take him home (when he is ready, of course!).
We are hugging everyone a little tighter tonight and thanking God for his comforting peace and his endless love.
We have so much to be grateful for.
Words can not express what I want to share with each of you tonight. I hope my attempt will show you some glimpse of an amazing moment.
They had stopped Scott's sedation medication mid morning to help him wake up before they took the breathing tube out. Scott had not even budged hours after the medication was turned off. The nurse thought it would still be a long time before he was ready to be extubated.
Our parents slipped down to the cafeteria to eat and I joined them a few minutes after. We ate and made our way back up to the ICU. Mom and I went in first to check on Scott's progress. When we made it to the door, I saw that the Respiratory Therapist was packing up the ventilator. We quickly saw that Scott had been extubated. Mom and I went on the side of his bed and touched him and told him how much we loved him. Scott started to cry and we all shed many happy and thankful tears. Scott was back.
I called Janiece and told her with so much happiness in my heart that Scott was awake and he was himself. I put the phone next to Scott's ear and heard his dear wife tell him how much she loved him in between sobs. There was not a dry eye in the room. Thank you Janiece for loving Scott so much! I can't explain the magnitude and emotion that was in these moments. I can only say that I am blessed to have been there.
I asked the nurse how Scott how the extubation had went and this is what she told me:
Scott had been so very sedated she did not expect him to wake before she left at 7:00 tonight. She went in to check on him around 2:00 and he had his eyes open. The nurse asked Scott if he was ready to have the breathing tube taken out and he calmly shook his head yes.
They took the breathing tube out minutes later. After Scott had a minute to recover, in his raspy voice he asked where Janiece and his children were. The nurse explained that Janiece had gone home to attend Shaunie's graduation ceremony. Scott started to cry and said "I really wanted to go to that."
Shaunie, I know your Dad is so proud of you and it broke his heart to not be there for you tonight. The nurse commented on how she could feel his love for you and his great sadness that he had missed this important milestone in your life. He would have given anything to have been able to go.
Mom and I saw Scott moments after this and only moments after I had found out that Grandpa Manning passed away. Both moments were peaceful, calm, filled with love, happiness, and comfort.
Scott did not remember much initially, but as the night has progressed he is remembering more and more. I think he senses how ill he was. He desperately wants to go home, and we desperately want to take him home (when he is ready, of course!).
We are hugging everyone a little tighter tonight and thanking God for his comforting peace and his endless love.
We have so much to be grateful for.
The Best News in the Whole Wide World
Scott was just extubated (the breathing tube was taken out). He is calm and he is back to being Scott. He remembers getting his leg amputated but doesn't remember much from the time after he left the ICU the first time.
I have so many things I want to tell you all about, but right now I just want to continue to stand by Scott's bed and squeeze his hand...and now he is squeezing back.
With so much happiness and gratitude,
April
I have so many things I want to tell you all about, but right now I just want to continue to stand by Scott's bed and squeeze his hand...and now he is squeezing back.
With so much happiness and gratitude,
April
Wednesday, June 1, 2011
Summary of the day
I did attend rounds today and it was a really good experience. I feel much better about how Scott is doing and had my questions answered.
Here's a summary of the day, including what I learned in rounds:
The medical team was pleased with Scott's CT scan results, last night. They did want to do further testing and do a CT scan of his legs to ensure their was nothing concerning with them (blood clots, infection). The surgeon who did Scott's amputation evaluated Scott this morning and looked closely at his wound. He felt 100% confident that he had removed all the infection in Scott's leg and that Scott's current infection was not in his amputated leg. This is great news.
They also wanted to do another CT scan of his abdomen and one of his pelvis. He had all of these done about an hour ago and we don't know any results yet.
They believe that Scott's confusion (delirium) was brought on by infection (we'll get to that in a bit) and by sleep deprivation. It came on very acutely (that evening he was joking and visiting with us and by night he didn't know where he was).
Scott has a UTI (Urinary Tract Infection) and is being treated with antibiotics. They believe that the UTI is a contributor but not the only offender...and an infection somewhere else is brewing, but they are not sure yet.
They wanted to do a lumbar puncture (AKA Spinal Tap) to get a sample of Scott's spinal fluid to rule out meningitis. Unfortunately, they would need to roll Scott on his abdomen to get the sample and he couldn't be moved like that today. I'm not sure when or if they still plan on doing this test.
A bit of background...when Scott was admitted (two weeks ago tomorrow) his WBC (white blood cell) count was normal. This is completely shocking for what a terrible infection Scott had. It should have been very elevated to show that Scott's immune system was kicking in to fight off the first infection.
Currently his WBC count is normal (4.2), although he again has an infection. The doctors think that Scott's immune system is not quite working like it should. They are not trusting/relying on his lab results (at least the WBC count) to determine infection.
Scott's labs did show that he had a very low hematocrit (19.9) and hemoglobin (6.8), because of this he needed to have a blood transfusion and he received two units this morning. His platelets were also lower than I have seen them since his admission (they were 40-Scott's have been between 50-60 and normal is above 150).
He continues to have low sodium, which they are calling a "chronic problem." His sodium today was 127. His magnesium level was also low (1.7) and he received IV replacement of magnesium today as well.
They have not checked another ammonia level today and the doctors do not believe that Scott's confusion is related to his liver.
They also started the diuretic again (Lasix) to try and rid Scott of the extra fluid. Again his fluid intake is far exceeding his output and he is very swollen again. His hands look like puffy marshmallows.
Scott also had a NG tube placed (a tube down the nose- to give meds, suck fluid out of the belly, etc). I pray, pray, pray that they will be able to take this out before they wake Scott up, because he is going to hate that(who wouldn't?).
They talked in rounds today about placing a feeding tube and starting to feed Scott, but it has happened yet. The nutritionist came and talked to me about what Scott liked to eat, how his appetite usually is, etc. I told him he is a "meat and potatoes" kind of guy but somehow I don't believe that will be in his feeding tube. :)
Scott still has the breathing tube and their is no definite time frame for when they will try to extubate (take it out) him. The medication he is currently on to keep him sedated is not the best to allow Scott to reach a deep sleep (REM). They want to change him to a different medication to sedate him as well as allow him to be in a deep sleep.
He continues to do the work (breathing) on his own, although he did need a little assist when they were moving him around to do the CT scan.
They are also watching Scott's skin closely and changing his position frequently. Again, pray that Scott's skin can heal and not have any further insult. The last thing he needs is a bed sore.
Here is the plan:
Besides the UTI they are still looking for another source of infection. The honest truth though is, that we many never really know. Again, he is on three different antibiotics and it should cover any bugs.
They will keep him sedated and intubated at least for the night and see what tomorrow brings.
They will continue the antibiotics, while we wait to see if the infection manifests itself.
He does appear to be resting but he is moving his arms and head more tonight than he was this morning.
Here's a summary of the day, including what I learned in rounds:
The medical team was pleased with Scott's CT scan results, last night. They did want to do further testing and do a CT scan of his legs to ensure their was nothing concerning with them (blood clots, infection). The surgeon who did Scott's amputation evaluated Scott this morning and looked closely at his wound. He felt 100% confident that he had removed all the infection in Scott's leg and that Scott's current infection was not in his amputated leg. This is great news.
They also wanted to do another CT scan of his abdomen and one of his pelvis. He had all of these done about an hour ago and we don't know any results yet.
They believe that Scott's confusion (delirium) was brought on by infection (we'll get to that in a bit) and by sleep deprivation. It came on very acutely (that evening he was joking and visiting with us and by night he didn't know where he was).
Scott has a UTI (Urinary Tract Infection) and is being treated with antibiotics. They believe that the UTI is a contributor but not the only offender...and an infection somewhere else is brewing, but they are not sure yet.
They wanted to do a lumbar puncture (AKA Spinal Tap) to get a sample of Scott's spinal fluid to rule out meningitis. Unfortunately, they would need to roll Scott on his abdomen to get the sample and he couldn't be moved like that today. I'm not sure when or if they still plan on doing this test.
A bit of background...when Scott was admitted (two weeks ago tomorrow) his WBC (white blood cell) count was normal. This is completely shocking for what a terrible infection Scott had. It should have been very elevated to show that Scott's immune system was kicking in to fight off the first infection.
Currently his WBC count is normal (4.2), although he again has an infection. The doctors think that Scott's immune system is not quite working like it should. They are not trusting/relying on his lab results (at least the WBC count) to determine infection.
Scott's labs did show that he had a very low hematocrit (19.9) and hemoglobin (6.8), because of this he needed to have a blood transfusion and he received two units this morning. His platelets were also lower than I have seen them since his admission (they were 40-Scott's have been between 50-60 and normal is above 150).
He continues to have low sodium, which they are calling a "chronic problem." His sodium today was 127. His magnesium level was also low (1.7) and he received IV replacement of magnesium today as well.
They have not checked another ammonia level today and the doctors do not believe that Scott's confusion is related to his liver.
They also started the diuretic again (Lasix) to try and rid Scott of the extra fluid. Again his fluid intake is far exceeding his output and he is very swollen again. His hands look like puffy marshmallows.
Scott also had a NG tube placed (a tube down the nose- to give meds, suck fluid out of the belly, etc). I pray, pray, pray that they will be able to take this out before they wake Scott up, because he is going to hate that(who wouldn't?).
They talked in rounds today about placing a feeding tube and starting to feed Scott, but it has happened yet. The nutritionist came and talked to me about what Scott liked to eat, how his appetite usually is, etc. I told him he is a "meat and potatoes" kind of guy but somehow I don't believe that will be in his feeding tube. :)
Scott still has the breathing tube and their is no definite time frame for when they will try to extubate (take it out) him. The medication he is currently on to keep him sedated is not the best to allow Scott to reach a deep sleep (REM). They want to change him to a different medication to sedate him as well as allow him to be in a deep sleep.
He continues to do the work (breathing) on his own, although he did need a little assist when they were moving him around to do the CT scan.
They are also watching Scott's skin closely and changing his position frequently. Again, pray that Scott's skin can heal and not have any further insult. The last thing he needs is a bed sore.
Here is the plan:
Besides the UTI they are still looking for another source of infection. The honest truth though is, that we many never really know. Again, he is on three different antibiotics and it should cover any bugs.
They will keep him sedated and intubated at least for the night and see what tomorrow brings.
They will continue the antibiotics, while we wait to see if the infection manifests itself.
He does appear to be resting but he is moving his arms and head more tonight than he was this morning.
Some Answers...but not all
I'm sitting by Scott's bed while I type this. It's difficult to see him intubated and with a million things strapped to his hands and arms. But he looks like he is resting comfortably and so much more peaceful than he has been the last two days.
11:30pm turned into 2:45amlast night this morning, before Scott was able to have his CT scan and we were able to hear the results.
Apparently, his blood gases weren't "okay." His bicarb (one of the labs from his blood gases-to tell how well Scott was oxygenating his body) was low and they did not want to do the CT scan until he was able to receive a replacement of bicarb through his IV. This took awhile.
Overall, Scott's CT scan looked good.
He DOES NOT have any problems with his brain.
He DOES NOT have any blood clots.
He DOES NOT have any problems with his heart.
Praise God! These were some of the main concerns and we are now able to rule them out.
A plueral effusion (a build up of fluid between the tissues that line the lungs and chest cavity)was noted on his CT Scan on his lungs.
And of course, his liver impairment was noted on his CT scan. His liver is very small, but I don't know how it compares to his CT scan he had done months ago, when his liver problem was first diagnosed.
Right now, they believe that Scott has another infection (but not the same one that required his leg to be amputated). He again is on three antibiotics.
I haven't heard much about his labs and am waiting for them to round on Scott to learn more. They usually don't include family on these rounds, but I asked (nicely, of course :) to be included. their is a team of doctors helping Scott, sometimes the family never sees them. The ICU is it's own little world, it is great, and we are so pleased with Scott's care. I'm so grateful he is here and their is not a doubt in my mind that this is what Scott needs right now. I am struggling though, because it feels like we are at their mercy (which we are in so many ways). I'm an information person-I like to see the lab report, I want to read the CT scan myself, I want to hear for myself what the doctors have to say about Scott and what the plan is.
When Scott was intubated last night, the ventilator was doing all the work for him. It was breathing for Scott 100%, not necessarily because he could not do any of it on his own, but because he needed it would allow him to rest. This morning, he is still on the ventilator, but he is doing the work (breathing) himself.
His nurse last night told me that the intubation went really well. They did not have any difficulty placing the tube and Scott was sedated well and did not fight it. I was extremely worried about this and was so happy to hear this report.
I have a few concerns I want to address when I attend rounds this morning (yes, I am that annoying family member) :)
Questions to be addressed:
Scott is swelling again. He was on a diuretic before he came to the ICU but he has not had it since. With only a few hours under his belt, his hands and leg/foot are once again swollen.
Where do they believe the infection originated? (UTI? Lungs? Central line?). I realize that this is not top priority because he is being treated for every and any bug, but I think we can take steps in the future, for preventing, this if we could now where it came from.
What is the tentative time frame to leave Scott intubated/sedated? (initially we heard 2-3 days, but the nurse last night acted like it might be longer)
I also want to ensure his skin is being watched closely. He has a few areas of breakdown and I am terrified that they may turn into something worse if we do not watch closely and turn/move him often.
I have so many questions. I realize and know, that there are not going to be specific answers for many of them. I know we have to take this day by day, and it is difficult to predict how long he will be on the ventilator (or any other given problem) because tomorrow might be different than today.
I'm satisfied that he appears to be resting and I can't tell you how much I am praying that his brain is peaceful too--that these sleep induced days are doing what we hope they are.
I will update again after the rounds.
Much love,
April
11:30pm turned into 2:45am
Apparently, his blood gases weren't "okay." His bicarb (one of the labs from his blood gases-to tell how well Scott was oxygenating his body) was low and they did not want to do the CT scan until he was able to receive a replacement of bicarb through his IV. This took awhile.
Overall, Scott's CT scan looked good.
He DOES NOT have any problems with his brain.
He DOES NOT have any blood clots.
He DOES NOT have any problems with his heart.
Praise God! These were some of the main concerns and we are now able to rule them out.
A plueral effusion (a build up of fluid between the tissues that line the lungs and chest cavity)was noted on his CT Scan on his lungs.
And of course, his liver impairment was noted on his CT scan. His liver is very small, but I don't know how it compares to his CT scan he had done months ago, when his liver problem was first diagnosed.
Right now, they believe that Scott has another infection (but not the same one that required his leg to be amputated). He again is on three antibiotics.
I haven't heard much about his labs and am waiting for them to round on Scott to learn more. They usually don't include family on these rounds, but I asked (nicely, of course :) to be included. their is a team of doctors helping Scott, sometimes the family never sees them. The ICU is it's own little world, it is great, and we are so pleased with Scott's care. I'm so grateful he is here and their is not a doubt in my mind that this is what Scott needs right now. I am struggling though, because it feels like we are at their mercy (which we are in so many ways). I'm an information person-I like to see the lab report, I want to read the CT scan myself, I want to hear for myself what the doctors have to say about Scott and what the plan is.
When Scott was intubated last night, the ventilator was doing all the work for him. It was breathing for Scott 100%, not necessarily because he could not do any of it on his own, but because he needed it would allow him to rest. This morning, he is still on the ventilator, but he is doing the work (breathing) himself.
His nurse last night told me that the intubation went really well. They did not have any difficulty placing the tube and Scott was sedated well and did not fight it. I was extremely worried about this and was so happy to hear this report.
I have a few concerns I want to address when I attend rounds this morning (yes, I am that annoying family member) :)
Questions to be addressed:
Scott is swelling again. He was on a diuretic before he came to the ICU but he has not had it since. With only a few hours under his belt, his hands and leg/foot are once again swollen.
Where do they believe the infection originated? (UTI? Lungs? Central line?). I realize that this is not top priority because he is being treated for every and any bug, but I think we can take steps in the future, for preventing, this if we could now where it came from.
What is the tentative time frame to leave Scott intubated/sedated? (initially we heard 2-3 days, but the nurse last night acted like it might be longer)
I also want to ensure his skin is being watched closely. He has a few areas of breakdown and I am terrified that they may turn into something worse if we do not watch closely and turn/move him often.
I have so many questions. I realize and know, that there are not going to be specific answers for many of them. I know we have to take this day by day, and it is difficult to predict how long he will be on the ventilator (or any other given problem) because tomorrow might be different than today.
I'm satisfied that he appears to be resting and I can't tell you how much I am praying that his brain is peaceful too--that these sleep induced days are doing what we hope they are.
I will update again after the rounds.
Much love,
April
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